Friday, July 24, 2009

This morning I viewed a post on My World According to Lupus (You can connect to this blog; it appears on the right of my blog under "Blogs." Lupus Girl discusses how stress can help to trigger sympoms in people who have chronic illnesses. She also mentions some other very important things in relation to chronic illness.

Anyway, I have been feeling a bit frustrated lately. Sometimes, I feel very misunderstood. Perhaps, I do expect too much of people sometimes. My sister once told me that. And, when your expectations are not met, sometimes that does hurt. It might not be right...But, that is how I feel.

After reading the above blog this morning, it was ironic that the writer hit on many of the things I am feeling right now. So, I ended up venting on Lupus Girl's blog. Thanks Lupus Girl for allowing me to vent. I needed it. God Bless!

Here is what I wrote:
OMG--Alot of what you are talking about, I plan to discuss soon on my blog because I am feeling some of these things like right now.

I know the power of stress and it isn't good when you have chronic health issues. But, currently I am not under too much stress...some, but not too much.

What hit me most is your mention of how others don't get it. I often experience this, because my sometimes "invisible illness" is quite painful even when others can't see my symptoms.
I really need to work on myself in that respect and know that I can't necessarily expect others to understand all of the time (even though I would).

I must remember that no one is perfect. Although I know I have other faults, I happen to be empathetic and not everyone is empathetic to the same degree. I have to accept that and not let it bother me. I am working on it.

And the part about the doctors saying well "that" couldn't be a trigger. Yes, I want to scream, "Certain foods, stress, medications, certain activities, etc. can be a trigger--Duh!" I am so sick of doctors making statements that they cannot fully back up. I'd rather they just said nothing instead of making incorrect blanket statements.

With all of that being said, "Lord, I am grateful for the support I do get. I do have many supportive people in my life." I just needed to get out my frustrations--that's all.


Reasons to be Cheerful 1,2,3 said...

I empathise! People don't always 'get' it and we try to be normal so don't always want to have to spell it out. It's difficult!

Anonymous said...

You are so welcome!! And we all need to vent once in a while and yes your sister is right, because we expect others to get it when they never will, perhaps we need to remember to "ask" for help. My friends and family don't live with me so they don't see first hand the day to day struggle associated with Lupus so they don't know what we need. Also we are the givers in this world so we except others to see that we need help when they do not, they are still expecting us to be the same old helpful person we always are. So ask for it and don't be afraid to ask for it, especially when you need it!!!

ChyvonneB said...


Thanks for the comments. As chronic illness can get lonely and frustrating, it's therapeutic to share with others who can relate on some level. Thank God for blogging!

God Bless