Thursday, July 22, 2010

Dystonia Survey

Share your experiences with Dystonia. The survey link can be found at:

Thursday, July 15, 2010

Any insight into The ST Recovery Clinic?

I believe that I have asked this question before. I'm not sure who is reading this blog (Hopefully, a few people...). But, my question is for anyone (with Cervical Dystonia) who has worked with The ST Recovery Clinic, under the guidance of Abby Brown.

I know the program does not claim to offer a cure for the disorder. But, I was wondering if anyone can attest to the program having worked to make the symptoms of CD easier to deal with. I would love to talk with someone who has tried the program.

As, it is expensive. But, I've gone through physical therapy which is also expensive. Due to no fault of the PTs, treatment is sort of a guessing game, to a large extent. My last PT apologized for not being able to help me more. He did his best. It's just the nature of the beast...

So, if anyone has been a "pateint" under The ST Recovery Clinic and has any feedback, please share with me. I think many of us who are suffering with the discomfort and pain of this disorder would appreciate it.

Thank you

Tuesday, July 13, 2010

The American Dystonia Society

The American Dystonia Society seems to be making a strong effort to educate people about Dystonia. Their efforts to raise funds for Dystonia research appear to be very impressive as well. View info about The American Dystonia Society at: