Wednesday, December 30, 2009
Well, Mary Shomon, author and thyroid disease activist, has written an article, The Top Ten Stories Affecting Thyroid Patients in the Decade from 2000-2009. View the article at:
It's pretty interesting.
For anyone contemplating RAI due to Grave's Disease or another condition that has affected the thyroid, please check out the following site at:
I have had RAI as treatment for Grave's Disease. Since then, there is a little more information out there about this procedure--thanks to patients and advocates who have gone through it and know the associated problems that can occur as a result of destroying the thyroid. Unfortunately, many doctors are quick to suggest RAI because it is a "quick" and "convenient" method of TREATING the disease. However, destroying the thyroid does not cure the underlying disease.
I, like many others, have had major issues as a result of destroying my thyroid function through RAI. Unfortunately, I followed my doctor's advice. So, as I said, I suggest doing the research and heavily weighing your options (i.e. natural therapies to get your conditon under control).
Please know, Grave's Disease must be resolved or you risk other issues such as heart problems and osteoporosis to name a few; doing nothing is not an option. In the end, a more drastic approach such as RAI may be necessary. But, I suggest trying other options first.
My mother has a friend who has a 14 year-old-son with Grave's Disease. Unfortunately, the young man is about to undergo RAI, because antithyroid meds have been ineffective at putting him into remission. Of course, his doctors tell him that most people do well after RAI. Well, this doctor hasn't talked to me or others who haven't done so well. I hope and pray this young man does well. It just breaks my heart that this is his only option.
Hopefully, the future will bring better options for treating conditions that affect the Thyroid!
Saturday, December 26, 2009
Thursday, December 24, 2009
Tuesday, December 22, 2009
Then, when I saw recent pictures and footage of her on T.V., I immediately thought that she must have been anorexic. She was grossly thin. Then, I heard that she had a heart ailment.
I also read that Murphy had been reported as saying that certain medications increased her heart rate (this can be dangerous). After hearing all of this, I began to wonder if she could have been suffering from Grave's Disease, an autoimmune disease that can affect the Thyroid.
As a person who has GD, I have been suspected on numerous occasions (by doctors, etc.) of being anorexic. You should've seen me when I was first diagnosed with GD; I seriously looked like a concentration camp victim. As, this disease speeds up the metabolism and causes weight issues regardless of how much is eaten. Even after treatment, I have many issues including the inability to gain weight, intolerance to certain foods and medications, rapid heart rate, etc.
Regardless of what caused Murphy's death, it is so sad and unfortunate that she has passed away at such an early age. My thoughts and prayers are with her family.
Below is an article regarding the possibility of Murphy having had a thyroid condition. It looks like I'm not the only one who suspects that this could be a possibility:
Saturday, December 19, 2009
Friday, December 18, 2009
Tuesday, December 15, 2009
Even though I've been on this GD roller coaster for at least 10 years, I only started looking into the effects of diet and other factors (i.e. medications, intestinal issues, food intolerances, etc.) when I started developing more illnesses (i.e. Osteopenia, high cholesterol, and Cervical Dystonia--to name a few). Currently, I am reading a book about inflammation (an underlying issue with most illnesses).
Today, I did a few searches: "salt and Grave's Disease" and "foods to avoid with Grave's Disease." I have posted some interesting links below.
Saturday, December 12, 2009
Monday, December 7, 2009
Article: Doctors Who Don't Listen to What Part About This Medication Doesn't Work for Me Do You Not Understand?
Thursday, December 3, 2009
Dr. Snyderman mentioned how robotics are being used in working with people who have Cerebral Palsy. She also mentioned that under the Obama administration, extraordinary advances are being made in terms of stem cell research. How hopeful and exciting!
Tuesday, December 1, 2009
I saw some books (about Dystonia) that looked interesting on Amazon.com. One of the books came out today. I have not ready any of them, yet.
Yoga for Movement Disorders: Rebuilding Strength, Balance and Flexibility for Parkinson's Disease and Dystonia (Spiral-bound)~ Renee Le Verrier (Author)
The Dystonia Patient: A Guide to Practical Management (Paperback)~ Michael S. Okun (Author, Editor)
Living Well with Dystonia: A Patient Guide (Paperback)~ M.D. Daniel Troung (Author), M.D. Mayank Pathak (Author), M.D. Karen Frei (Author)