Tuesday, October 20, 2009

Chronic Illness and Finding Support

While I have joined an online support group for Dystonia, every story and daily struggle is so different. Doctors have told me that Dystonia is incurable. Items that I read tell me that Dystonia is incurable. But, I pray for healing anyway!!! As, He has the final say--rather it is yay or nay.

Anyway, I am now on a muscle relaxant for the Dystonia. I know these meds have side effects, and I will not take them long term due to the possible effects on the body. In addition, I have been getting Botox injections for the muscle spasms every three months since April of 2008 when I was diagnosed with the disorder. The left side of my neck seems better. The right side of the neck spasms all day. So, it feels like a super strength rubber band constantly trying to pull my neck down.

My internist gave me a muscle relaxant called Flexeril. It makes me very drowsy. But, it seems to help with the spasms. Last year when I tried a muscle relaxant, there was no relief. Possibly, if I would have taken the extremely high dosage of medications that were prescribed by my neurologist, I might have found some relief. Although I was in great pain and discomfort, I was unwilling to be drugged out of my skull and chose not to take the meds.

Lord I pray: Please let the muscle relaxant release the spasms so well that they never return. Please continue to give me strength and courage. Amen.

P.S. I would love to talk with someone who has been afflicted with Cervical Dystonia and has gotten considerably better by any means (i.e. Miracle, diet, exercise, medicine, Botox, etc.). Please contact me through this blog if you have any tips for me.

For those who are struggling with Dystonia or any other illness, I pray that God continues to grant you strength and courage!

1 comment:

Dystonia's Secret said...

Hello, you sound very positive and like you, I have been searching for support. I was just diagnosed on August 31st so I'm hoping it won't get worse but somehow, it keeps getting worse. I found another site at http://www.dystonia-bb.org/
Maybe you can find more help there...it's been very helpful for me. xo, sue