Dystonia to be featured on OWN, Feb. 2:
http://www.i-newswire.com/dystonia-to-be-featured-on-mystery/86257
I will be sharing my personal journey towards health and healing. I will be sharing info about my personal health issues including Dystonia, Leaky Gut Syndrome, and Graves' Disease. I will also be sharing health/nutrition info that I have researched/read about. ***Blog goes from newest entry to oldest. To read in order, go to Labels or Archives on the right side of the Blog. Thanks for reading! (The ads appearing near the bottom of this blog are not necessarily endorsed by myself).
Dystonia to be featured on OWN, Feb. 2:
http://www.i-newswire.com/dystonia-to-be-featured-on-mystery/86257
View story about a woman who went undiagnosed with Rheumatoid Arthritis for many years at:
A child (Jake) has DBS surgery to treat Dystonia...
http://www.cbsnews.com/video/watch/?id=6901023n
(Note: The intro advertisement is a bit choppy, but it smooths out nicely...be patient)
See story, "Dystonia Stealing Career From Young Photographer" at:
Information about The Dystonia Coalition:
http://www.movementdisorders.org/monthly_edition/2010/04/dystonia_coalition.php
The following is a fact sheet about Dystonia:
http://www.aans.org/en/Patient%20Information/Conditions%20and%20Treatments/Dystonia.aspx
Mrs. Carolina is a patient advocate for those with Cervical Dystonia:
Autism is one of those inexplicable neurological diseases--one day the afflicted child is fine and then it's like the lights go out on their personality, emotions, and overall functioning. This must be a devastating disorder to parents and families of children who have been stricken. My heart goes out to anyone and everyone who has been touched by Autism.
For more information, visit:
http://www.worldautismawarenessday.org/site/c.egLMI2ODKpF/b.3917065/
http://www.frontiersman.com/articles/2010/02/22/valley_life/doc4b835a80199bb678637711.txt
In the latest edition of Neurology Now, there is an article featuring PBS Frontline's Dave Iverson. He discusses his struggle with Parkinson's Disease. He also discusses his documentary, My Father, My Brother, and Me. This documentary appeared on PBS last week. However I was able to watch the entire documentary at http://www.pbs.org/wgbh/pages/frontline/video/flv/generic.html?s=frol02p6c7&continuous=1.
Anyone who has Parkinson's Disease or knows anyone with the neurodegenerative disorder should view this documentary. In fact, anyone with any type of neurological and/or chronic disorder should view this documentary.
The documentary covers lots of territory in regards to Parkinson's Disease. The potential benefits of exercise in terms of possibly reducing the affects of Parkinson's are discussed in the film. In addition, stem cell research is also addressed.
All I can say is that this documentary is extremely informative as it sheds light on potential cures for this disease. It surely gives a sense of hope for patients who are suffering from Parkinson's Disease.
To order Food, Inc. visit https://www.amazon.com/s/ref=nb_sb_noss?url=search-alias%3Daps&field-keywords=Food+Inc.
To order Food Rules: An Eater's Manual by Michael Pollan, visit http://www.amazon.com/s/ref=nb_sb_noss?url=search-alias%3Daps&field-keywords=Michael+Pollan
The following is a link to a blog post written by Dr. A at Livable Low Carb. Basically the article/blog is stating that just because the doctor TELLS you that you don't have Celiac Disease, it doesn't necessarily mean that you don't have a sensitivity or intolerance to foods that contain gluten. Regardless of the doctor's assessment, you know your body best. If after ingesting gluten, for example, you feel like crap, then your body just might have a problem when it comes to digesting gluten--regardless of a test or assessment by a doctor. The same applies to other foods as well. You may not have an allergy to a certain food, but you might have a food sensitivity which can also cause compounding health issues (i.e. bloating, swelling, constipation, etc.). View the blog post at:
http://comfort-eaters-diet.blogspot.com/2010/01/flour-people-getting-twitchy.html
January is Thyroid Awareness Month. Visit the following link for more information about Thyroid Disease/Disorders:
http://www.thyroidawarenessmonth.com/
Out of frustration and concern:
I am trying to figure out how to help in exposing the unfair practices that are taking place in the treatment of patients who suffer from Thyroid disorders in hopes that these inadequate medical practices will change at some point.
Common complaints of patients who are receiving Thyroid Replacement Hormone due to a thyroid disorder are: not being adequately medicated, receiving very limited medication options although there are alternative methods for those who cannot tolerate the meds that are being pushed by a large pharmaceutical company, and being consistently ignored/dismissed by doctors when trying to receive help for lingering symptoms and complications.
Many people need Thyroid Replacement Hormone to stay alive. Current treatment is often unacceptable and must change on all levels including how doctors are being educated about Thyroid disorders and Autoimmune disorders that have led to Thyroid disorders.
I am a member of several well-run online groups which offer great advice and suggestions. We rely heavily on one another because of the lack of proper medical guidance by many doctors.
Within these groups, ideas have been bounced around. I know that members have tirelessly written to Congress people, media outlets, The FDA, Endocrinological Organizations, etc. Also, there has been talk of marching in Washington and filing class action lawsuits.Bottom line--we need help. We are not trying to cause problems. We just want to enjoy our lives. But when you're consistently being under medicated, over medicated, dismissed, and given inadequate treatment, it's a bit hard to enjoy life to its fullest.
Visit msnbc.com for breaking news, world news, and news about the economy
I saw some books (about Dystonia) that looked interesting on Amazon.com. One of the books came out today. I have not ready any of them, yet.
Yoga for Movement Disorders: Rebuilding Strength, Balance and Flexibility for Parkinson's Disease and Dystonia (Spiral-bound)~ Renee Le Verrier (Author)
I was listening to a radio show in which there was a doctor who was discussing Lupus. From listener comments and from my prior interactions with others who have an Autoimmune Disease, a common thread seems to be faulty care from doctors who treat these disorders.
Personally, I see an Endocrinologist once a year; he assesses my Thyroid Hormone levels. Even when I feel like crap, these numbers are usually stable. Unfortunately, I am being seen by a specialist whose primary training has more than likely been in the area of diabetes and/or another area that fits under the Endocrinology umbrella.Below are recent posts that I have written for the blog, Illness and Life.
Reflection: The Problem With Some Medical Professionals at:
Choosing To Be An Optimistic Realist at:
http://vonneb.wordpress.com/2009/11/01/choosing-to-be-an-optimistic-realist/